how so? forum members submit info voluntarily and anonymously
natural experiments of your kind i.e. spontaneous resolution with some unexpected agent or lifestyle change—and other best practices based on n,000′s of years living with a condition—there has to be value there for drug developers and clinicians. The work is authenticating claims and maybe matching people to scientists?
In response to “how so?”: If this catches on, you can sell a drug by infiltrating the forum and posting fake news of miracle cures under many different names.
For schemes like this to work, you need some way of guessing who trusts whom. The spammers might claim to trust each other, and you never really know who the spammers are. The best you can hope for is for the real people to get good information from other real people they trust, and the spammers get garbage information from other spammers but that doesn’t matter because they are spammers.
Because at the point where people browse these forums, they are so desperate they will try literally anything, and are surrounded by people who feel the same, and a lot of the things being reported cannot possibly work, are extremely tied to very specific conditions, and possibly very dangerous. People will also select the meds they hear people report cures of in ways that emotionally resonate, not because there is good evidence it would transfer for their case, or at least be safe.
how so? forum members submit info voluntarily and anonymously
natural experiments of your kind i.e. spontaneous resolution with some unexpected agent or lifestyle change—and other best practices based on n,000′s of years living with a condition—there has to be value there for drug developers and clinicians. The work is authenticating claims and maybe matching people to scientists?
In response to “how so?”: If this catches on, you can sell a drug by infiltrating the forum and posting fake news of miracle cures under many different names.
For schemes like this to work, you need some way of guessing who trusts whom. The spammers might claim to trust each other, and you never really know who the spammers are. The best you can hope for is for the real people to get good information from other real people they trust, and the spammers get garbage information from other spammers but that doesn’t matter because they are spammers.
I don’t know of any implementations of this.
Because at the point where people browse these forums, they are so desperate they will try literally anything, and are surrounded by people who feel the same, and a lot of the things being reported cannot possibly work, are extremely tied to very specific conditions, and possibly very dangerous. People will also select the meds they hear people report cures of in ways that emotionally resonate, not because there is good evidence it would transfer for their case, or at least be safe.