kparker

• kparker 31 Oct 2022 23:28 UTC

  1 point

  0

  in reply to: Elizabeth’s comment on: My re­sent­ful story of be­com­ing a med­i­cal miracle

  how so? forum members submit info voluntarily and anonymously

  natural experiments of your kind i.e. spontaneous resolution with some unexpected agent or lifestyle change—and other best practices based on n,000′s of years living with a condition—there has to be value there for drug developers and clinicians. The work is authenticating claims and maybe matching people to scientists?

• kparker 30 Oct 2022 20:32 UTC

  2 points

  0

  on: My re­sent­ful story of be­com­ing a med­i­cal miracle

  There really should be an aggregator for medical knowledge found on disease forums and posts of this kind (is there one?)