Seems like 5-10% false negative for when they already know exactly what you have? And a 30% number is randomly quoted online… I guess it totally depends on what someone has, how much they poop, etc
Yeah i would bet 40% on a worm (ie 67% of my 60% on GI pathogen)
weird stuff started happening to me like extreme sensitivity to caffeine
Only explanation for this (and the salt sensitivity etc) IMO is a hole/thinning in gut lining. Which is moderately likely (30%?) with nonworm gut pathogen but very likely (75%?) with a worm.
Thank you, this is good to know. I reached out to one of my doctors to see what they think of this idea. My own feeling is that 40% on a worm is too high. My eosinophils count is normal (and I know sometimes that can be normal even with a parasite), the viral illness seems like a sufficient explanation of kick-starting my chronic symptoms, I tested negative on the stool test, and I already know I have gut problems (and those gut problems seem to be explained by SIBO/leaky gut). Basically, everything I see seems to be explained well by stuff that I already know is going on, and I don’t see any clear evidence of parasites. I would still put maybe 3% on it though.
My current distribution of root cause now looks something like: 35% on autoimmune/pre-autoimmune (e.g. Sjogren’s syndrome), 25% on MCAS, 10% on dysautonomia/POTS, 5% on latent virus/viral reactivation, 5% on SIBO/impaired MMC, 3% on some kind of parasite, 17% other causes.
Only explanation for this (and the salt sensitivity etc) IMO is a hole/thinning in gut lining.
Why not dysautonomia? I am newly sensitive to a lot of things, including heat, light, and sound that don’t directly involve the gut.
False negative rate is high apparently.
Seems like 5-10% false negative for when they already know exactly what you have? And a 30% number is randomly quoted online… I guess it totally depends on what someone has, how much they poop, etc
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC266208/?page=2
Some reports of people just taking dewormers despite negative tests and having good results. Example:
https://old.reddit.com/r/SIBO/comments/euuvqw/psa_your_sibo_could_be_parasites_even_if_you/
Idk how broad-spectrum/effective dewormers typically are. Apparently this one killed a bunch of random stuff but some species can come back after:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7983463/
Yeah i would bet 40% on a worm (ie 67% of my 60% on GI pathogen)
Only explanation for this (and the salt sensitivity etc) IMO is a hole/thinning in gut lining. Which is moderately likely (30%?) with nonworm gut pathogen but very likely (75%?) with a worm.
Thank you, this is good to know. I reached out to one of my doctors to see what they think of this idea. My own feeling is that 40% on a worm is too high. My eosinophils count is normal (and I know sometimes that can be normal even with a parasite), the viral illness seems like a sufficient explanation of kick-starting my chronic symptoms, I tested negative on the stool test, and I already know I have gut problems (and those gut problems seem to be explained by SIBO/leaky gut). Basically, everything I see seems to be explained well by stuff that I already know is going on, and I don’t see any clear evidence of parasites. I would still put maybe 3% on it though.
My current distribution of root cause now looks something like: 35% on autoimmune/pre-autoimmune (e.g. Sjogren’s syndrome), 25% on MCAS, 10% on dysautonomia/POTS, 5% on latent virus/viral reactivation, 5% on SIBO/impaired MMC, 3% on some kind of parasite, 17% other causes.
Why not dysautonomia? I am newly sensitive to a lot of things, including heat, light, and sound that don’t directly involve the gut.
Oh that’s a lot of evidence against a worm probably. I am out of ideas. Good luck. I hope you can figure it out