Thank you, this is good to know. I reached out to one of my doctors to see what they think of this idea. My own feeling is that 40% on a worm is too high. My eosinophils count is normal (and I know sometimes that can be normal even with a parasite), the viral illness seems like a sufficient explanation of kick-starting my chronic symptoms, I tested negative on the stool test, and I already know I have gut problems (and those gut problems seem to be explained by SIBO/leaky gut). Basically, everything I see seems to be explained well by stuff that I already know is going on, and I don’t see any clear evidence of parasites. I would still put maybe 3% on it though.
My current distribution of root cause now looks something like: 35% on autoimmune/pre-autoimmune (e.g. Sjogren’s syndrome), 25% on MCAS, 10% on dysautonomia/POTS, 5% on latent virus/viral reactivation, 5% on SIBO/impaired MMC, 3% on some kind of parasite, 17% other causes.
Only explanation for this (and the salt sensitivity etc) IMO is a hole/thinning in gut lining.
Why not dysautonomia? I am newly sensitive to a lot of things, including heat, light, and sound that don’t directly involve the gut.
Thank you, this is good to know. I reached out to one of my doctors to see what they think of this idea. My own feeling is that 40% on a worm is too high. My eosinophils count is normal (and I know sometimes that can be normal even with a parasite), the viral illness seems like a sufficient explanation of kick-starting my chronic symptoms, I tested negative on the stool test, and I already know I have gut problems (and those gut problems seem to be explained by SIBO/leaky gut). Basically, everything I see seems to be explained well by stuff that I already know is going on, and I don’t see any clear evidence of parasites. I would still put maybe 3% on it though.
My current distribution of root cause now looks something like: 35% on autoimmune/pre-autoimmune (e.g. Sjogren’s syndrome), 25% on MCAS, 10% on dysautonomia/POTS, 5% on latent virus/viral reactivation, 5% on SIBO/impaired MMC, 3% on some kind of parasite, 17% other causes.
Why not dysautonomia? I am newly sensitive to a lot of things, including heat, light, and sound that don’t directly involve the gut.
Oh that’s a lot of evidence against a worm probably. I am out of ideas. Good luck. I hope you can figure it out