I guess one of the first things to do to create/market/… an interest from labs/researchers/nerds/… would be to find other people suffering from the same illness and create/coin a name for that illness and create some association/website/gatherings/… to communicate about it like it is done for most other illnesses?
Funny that you mention this, because I was just musing about this the other day over on my personal website. Unfortunately I wasn’t able to come up with a very good name...
It must be really dreadful as it seems to be the case for you, to have a mysterious chronic illness without even a specific name attached to it (from what I understand), only a set of symptoms which (similarly to ME/CFS) can have many different possible root causes/factors.
I really appreciate you saying this!
I’ve looked at some of Sarah Myhill’s work before, and yeah, I think it’s a good example of someone seriously thinking about how to solve an illness. I wish I knew how to get more people like her to study different kinds of illnesses too.
Funny that you mention this, because I was just musing about this the other day over on my personal website. Unfortunately I wasn’t able to come up with a very good name...
I really appreciate you saying this!
I’ve looked at some of Sarah Myhill’s work before, and yeah, I think it’s a good example of someone seriously thinking about how to solve an illness. I wish I knew how to get more people like her to study different kinds of illnesses too.