It seems like there’s a deep rabbit hole here of fights over illness definition. Jenna Luche Thayer fought a battle for changing how lime disease is diagnosed and wrote $Lyme: How Medical Codes Mortally Wound Corruption and Scientific Fraud about her fight. While that title does sound like she’s a conspiracy nut, she was good enough at fighting her battle to get the UN to add new ICD codes by leveraging the UN rapporteur for human rights which choses that she understands the system well enough to effectively move in it.
It seems like there’s a deep rabbit hole here of fights over illness definition. Jenna Luche Thayer fought a battle for changing how lime disease is diagnosed and wrote $Lyme: How Medical Codes Mortally Wound Corruption and Scientific Fraud about her fight. While that title does sound like she’s a conspiracy nut, she was good enough at fighting her battle to get the UN to add new ICD codes by leveraging the UN rapporteur for human rights which choses that she understands the system well enough to effectively move in it.