It’s a trivial inconvenience, if you know about SNPedia, and if you’re willing to trust them with your information.
I found out about SNPedia after I had purchased my 23andme kit, and poked around with the information they gave. Right now, 23andme gives you your genome, and some ancestry information. Unlikely I would have purchased it in the first place without the promise of associated health care info.
That’s the way the apparatchiks roll. Whatever is good for them is ok. Good for you and me, not so important.
Incentives for government employees sometimes don’t match the needs of the people.
It often doesn’t even match the needs of government employees.
They want the data, and they want to make it impossible for 23andme to collect it.
Of course, the first order of business is always protecting the power of entrenched interests. Can’t ever threaten that. Once that is secure, then they’ll try to do something with the data.
Good point. My guess is that with some googling, the median 23andme customer would find out about SNPedia and find some tool they trust. Of course, requiring even a tiny bit of open-ended research on the part of the prospective consumer is what constitutes the trivial inconvenience.
Re: 23andme supplicating USG, that seems like a reasonable strategy for advancing personal genomics. Across-the-board liberalization of drugs and medical devices won’t happen soon.
I’ve been using SNPedia for years.
It’s a trivial inconvenience, if you know about SNPedia, and if you’re willing to trust them with your information.
I found out about SNPedia after I had purchased my 23andme kit, and poked around with the information they gave. Right now, 23andme gives you your genome, and some ancestry information. Unlikely I would have purchased it in the first place without the promise of associated health care info.
Amusingly, the NIH just gave those criminals at 23andme a grant for a research front end to their system.
http://www.ibtimes.com/23andme-back-dead-thanks-million-dollar-grant-your-genetic-data-1643884
That’s the way the apparatchiks roll. Whatever is good for them is ok. Good for you and me, not so important.
It often doesn’t even match the needs of government employees.
They want the data, and they want to make it impossible for 23andme to collect it.
Of course, the first order of business is always protecting the power of entrenched interests. Can’t ever threaten that. Once that is secure, then they’ll try to do something with the data.
I see that 23andme is now busy sucking up to the government.
http://www.columbusceo.com/content/stories/apexchange/2014/07/06/fda-setback-alters-course-but-not-mission-for-wojcicki-and-her-23andme.html
I’m sure that once the NSA gets onboard with dna collection, it will be mandatory in schools. In case of abduction, don’tcha know. For the children.
Good point. My guess is that with some googling, the median 23andme customer would find out about SNPedia and find some tool they trust. Of course, requiring even a tiny bit of open-ended research on the part of the prospective consumer is what constitutes the trivial inconvenience.
Re: 23andme supplicating USG, that seems like a reasonable strategy for advancing personal genomics. Across-the-board liberalization of drugs and medical devices won’t happen soon.