Yesterday I was reading about a medical student who discovered to suffer from Castleman disease, so he managed to specialize in that disease and in creating a network to coordinate various researchers. This is also common between people who suffer from or have a close relative that died from a rare disease (my fiancée is deeply fond of “Mystery diagnosis”): it seems that creating a foundation to raise awareness and coordinate effort is a very common response. One would think that in the era of globalization and the Web such things would be trivial, but as the Scott’s notes show, coordination and common knowledge between human beings is still a huge added value.
Yesterday I was reading about a medical student who discovered to suffer from Castleman disease, so he managed to specialize in that disease and in creating a network to coordinate various researchers. This is also common between people who suffer from or have a close relative that died from a rare disease (my fiancée is deeply fond of “Mystery diagnosis”): it seems that creating a foundation to raise awareness and coordinate effort is a very common response.
One would think that in the era of globalization and the Web such things would be trivial, but as the Scott’s notes show, coordination and common knowledge between human beings is still a huge added value.