Dementia patients become increasingly dependent on their caregivers, and as a caregiver, it isn’t a great strategy to rely on giving the dementia patient advice and trying to convince them of something. Instead, you can model your role as trying to maximize the happiness of the patient’s remaining lifespan, primarily through interventions that don’t rely on the patient being agent-y. Some things that I have done for relatives with dementia that seem net positive:
Making sure there is always accessible water in the rooms they hang out in so they are less likely to forget to drink
Provide brightly colored everyday items, such as cups and plates
Play music that evokes pleasant emotions in them
Allow them to talk freely about the past / their long term memories
Hold their hand, brush their hair, massage—loving touch is a great way to communicate with dementia patients
(Not for everyone) Provide means for the person to express themselves creatively, especially if they enjoyed that in the past (eg: art materials, musical instruments)
Eat with them, encourage them gently to eat and drink regularly
Don’t get angry if they are confused/wrong about things, validate their emotions and give generic words of reassurance
Enable the person to head outside as much as possible and get natural light and fresh air—take them to the park or garden
Ultimately, communicating with and helping a dementia patient is extremely far removed from dealing with a rationalist. Instead, communication is primarily based on emotion and senses. In my experience, looking after dementia patients well, by providing the company, emotional support, and physical things that they need, slows down the progression of the disease as much as possible. Without this, dementia can progress extremely quickly, however in the presence of effective help, I believe dementia patients can experience net-positive lives for many years, as well as enrich the lives of their friends and relatives.
I agree with most of this advice. I probably couldn’t do any better than that. But it seems unlikely to be the best that’s possible. Dementia can probably be stopped in early stages if there’s a way to persuade the patient to make larger lifestyle changes. It’s frustrating that such persuasion is unusually hard.
Ah yes it’s a separate question when we have someone who does not yet suffer from dementia but is at risk and who can plausibly take some actions to reduce the risk / delay the onset of dementia. I am definitely no expert on this but I would assume promoting better physical and psychological health reduces dementia risk alongside other bad side-effects of aging. The psychological part is key. I think if you know someone at risk of dementia, making sure they have a supportive family and/or friends and they don’t feel lonely goes a long way to promoting better psychological health and reducing dementia risk, even if, for example, their diet and exercise regime is not optimal.
Thank you so much for your thoughtful comment! Specific pieces of advice like these are exactly what I am looking for. One question: what is the rationale behind the brightly colored items?
I have heard this recommended by others but never looked into the research. Anecdotally I have found that very elderly patients/people with dementia react positively to colorful things. However, a casual googling of this revealed that “colorful stuff for dementia patients” is more of a “folk wisdom” being passed around as opposed to something with a rigorous backing (there are articles about the phenomenon like this: https://www.enablingenvironments.com.au/colour-perception-and-contrast.html). My theory of why it might be good is a) more sensory stimulation which keeps the brain active, especially in more severe cases b) helps them distinguish and remember the locations of different items more easily c) association with positive emotions (bright → happy) d) as eyesight declines, brighter colors are required to elicit the same amount of attention / visual stimulation
Dementia patients become increasingly dependent on their caregivers, and as a caregiver, it isn’t a great strategy to rely on giving the dementia patient advice and trying to convince them of something. Instead, you can model your role as trying to maximize the happiness of the patient’s remaining lifespan, primarily through interventions that don’t rely on the patient being agent-y. Some things that I have done for relatives with dementia that seem net positive:
Making sure there is always accessible water in the rooms they hang out in so they are less likely to forget to drink
Provide brightly colored everyday items, such as cups and plates
Play music that evokes pleasant emotions in them
Allow them to talk freely about the past / their long term memories
Hold their hand, brush their hair, massage—loving touch is a great way to communicate with dementia patients
(Not for everyone) Provide means for the person to express themselves creatively, especially if they enjoyed that in the past (eg: art materials, musical instruments)
Eat with them, encourage them gently to eat and drink regularly
Don’t get angry if they are confused/wrong about things, validate their emotions and give generic words of reassurance
Enable the person to head outside as much as possible and get natural light and fresh air—take them to the park or garden
Ultimately, communicating with and helping a dementia patient is extremely far removed from dealing with a rationalist. Instead, communication is primarily based on emotion and senses. In my experience, looking after dementia patients well, by providing the company, emotional support, and physical things that they need, slows down the progression of the disease as much as possible. Without this, dementia can progress extremely quickly, however in the presence of effective help, I believe dementia patients can experience net-positive lives for many years, as well as enrich the lives of their friends and relatives.
I agree with most of this advice. I probably couldn’t do any better than that. But it seems unlikely to be the best that’s possible. Dementia can probably be stopped in early stages if there’s a way to persuade the patient to make larger lifestyle changes. It’s frustrating that such persuasion is unusually hard.
Ah yes it’s a separate question when we have someone who does not yet suffer from dementia but is at risk and who can plausibly take some actions to reduce the risk / delay the onset of dementia. I am definitely no expert on this but I would assume promoting better physical and psychological health reduces dementia risk alongside other bad side-effects of aging. The psychological part is key. I think if you know someone at risk of dementia, making sure they have a supportive family and/or friends and they don’t feel lonely goes a long way to promoting better psychological health and reducing dementia risk, even if, for example, their diet and exercise regime is not optimal.
This is a great answer, thank you !
Thank you so much for your thoughtful comment! Specific pieces of advice like these are exactly what I am looking for. One question: what is the rationale behind the brightly colored items?
I have heard this recommended by others but never looked into the research. Anecdotally I have found that very elderly patients/people with dementia react positively to colorful things. However, a casual googling of this revealed that “colorful stuff for dementia patients” is more of a “folk wisdom” being passed around as opposed to something with a rigorous backing (there are articles about the phenomenon like this: https://www.enablingenvironments.com.au/colour-perception-and-contrast.html). My theory of why it might be good is a) more sensory stimulation which keeps the brain active, especially in more severe cases b) helps them distinguish and remember the locations of different items more easily c) association with positive emotions (bright → happy) d) as eyesight declines, brighter colors are required to elicit the same amount of attention / visual stimulation