Previously, Tourette’s occupied the same category in my mind as stuttering, a lifelong organic brain disease or wiring fault not amenable to coaching or psychiatry. However, I’m questioning this after watching The Vow, an NXIVM documentary illustrating, with video, a childhood Tourette’s sufferer be “cured” by some sort of negative reinforcement training. Upon looking up the Wikipedia, I’m surprised to find a prognosis of “80% will experience improvement to disappearance of tics beginning in late teens.” Further, there’s been an extreme uptick in Tourette’s experienced by children simply from watching TikTok videos of others’ tics, including taking on the tics they’re exposed to.
Together, these three data points have shifted my belief that Tourette’s, and perhaps stuttering, is not some physical wiring defect, but a named conversion disorder. Perhaps psychiatry already knew this and was being polite, but I did not. I understand the need to group similar behavior disorders into diseases, regardless of somatic or organic origin. However, I also see the danger in naming (or renaming) somatoform disorders like delusional parasitosis as Morgellons, giving legitimacy and cause célèbre to what are otherwise social contagions with no underlying organic etiology.
I can’t speak for others, but if one day I woke up with tics, I suspect my recovery path would be quite different depending on whether I was told, “this is a habit you can unlearn or will likely soon outgrow” or, “this is a serious, unique brain disease, and you deserve sympathy and accommodation.”
Previously, Tourette’s occupied the same category in my mind as stuttering, a lifelong organic brain disease or wiring fault not amenable to coaching or psychiatry. However, I’m questioning this after watching The Vow, an NXIVM documentary illustrating, with video, a childhood Tourette’s sufferer be “cured” by some sort of negative reinforcement training. Upon looking up the Wikipedia, I’m surprised to find a prognosis of “80% will experience improvement to disappearance of tics beginning in late teens.” Further, there’s been an extreme uptick in Tourette’s experienced by children simply from watching TikTok videos of others’ tics, including taking on the tics they’re exposed to.
Together, these three data points have shifted my belief that Tourette’s, and perhaps stuttering, is not some physical wiring defect, but a named conversion disorder. Perhaps psychiatry already knew this and was being polite, but I did not. I understand the need to group similar behavior disorders into diseases, regardless of somatic or organic origin. However, I also see the danger in naming (or renaming) somatoform disorders like delusional parasitosis as Morgellons, giving legitimacy and cause célèbre to what are otherwise social contagions with no underlying organic etiology.
I can’t speak for others, but if one day I woke up with tics, I suspect my recovery path would be quite different depending on whether I was told, “this is a habit you can unlearn or will likely soon outgrow” or, “this is a serious, unique brain disease, and you deserve sympathy and accommodation.”